Kickin for a Cure Fundraiser: SPECIAL THANKS
Iowa City, IA - We wanted to extend our gratitude to all that attended our Kickin for a cure fundraiser. The event was a tremendous success and we really appreciate the community support.
GGIA Apparel Available: GGIA Event T-Shirts and Bags available Now
Cedar Rapids, IA - We still have GGIA 34 Camp shirts available as well as our unique football bags. Visit our STORE page for the designs and contact Commissioner Lew for details.
2014 LINKS FOR LUCAS: SPECIAL THANKS
Amana, IA - I wanted to thank all of our Friends, Families, and Sponsors who attended and assisted in our annual Links for Lucas golf event. We enjoyed a beautiful day on the links, as well as continued our commitment in doing what we can to provide awareness and educate our community on Sanfilippo syndrome, for which there is no cure. Thanks to everyone who supported us. Looking forward to next years event.
SPECIAL THANKS TO OUR
Invisible Fence of Cedar Rapids
Cedar Rapids Janitorial
Gridiron Solutions, LLC - Sweet Lew
Sugar foot - Tibetan Terriers
Prodigium Technologies Inc. - ISU for Lucas
Electrical Workers Union
Title Boxing Club
JM Swank / JRRW Transport
I’m Lew Montgomery, former Iowa Hawkeye fullback and Waterloo Iowa native. I’m reaching out to family; friends and business partners to ask for your support in helping us make an impact our community. My entire life I learned to stare adversity in the face and overcome the obstacle by out working and being more mentally prepared than my opponent on and off the field. Our son Lucas suffers from a rare disorder called Sanfilippo Syndrome. Our opponent has no treatment or cure. I can’t out work it or prepare for it because it simply runs its course leading to grim results.
So we decided not to accept the results but figure out a way to make a difference. So, we decided to create events that encourage and engage people from all ages towards a healthy lifestyle whether it’s Laps for Lucas 5K Run/Walk, Links for Lucas – Swinging for a Cure or Farrell’s Kickboxing for a Cure – Level 10 for Lucas our entire family remains long-time devotees to health and fitness. It’s been a great stress relief for our entire family especially raising 3 daughters (Hailee, Chelsey and Mariah).
Lucas is 17 now and has spent his life battling countless medical problems, surgeries and doctors trying to uncover the mystery that was revealed as Sanfilippo Syndrome or MPS IIIB which is a progressive degenerative disorder effecting his cognitive and skeletal functions. As you can imagine, Lucas’ needs have changed and requires us to monitor his condition more closely. Since his first diagnosis at age 8, we saw his determination to keep fighting and because of his drive and our love for him we continue to create events that embrace his spirit and determination.
Our family, friends and community partners are so valuable to our efforts of finding a cure for this devastating disorder. Fortunately, clinical trials are being researched as we speak but still several years away for some of our kids. By providing positive options for families and mentoring our youth we can provide positive leadership experiences and life skills that can make a difference. Lucas has challenged us to step outside of the box and create flexible programs that cater to all types of people and business interest.
Our goal is to heighten MPS awareness and raise $150,000 in funding to support Sanfilippo research. Visit our donate page to provide a generous financial contribution, continue to participation and support our events and have a willingness to serve as ambassadors for our MPS related disorders. I know we can count on you!
For questions or business inquiries contact Commissioner Lew Montgomery at 319.654.4589